SICKLE CELL ANAEMIA - SCI & TECH

News: 1,000 letters, 20 yrs: The struggle to find a place for sickle cell anaemia in textbooks

 

What's in the news?

       For over two decades, a bespectacled doctor working in Maharashtra’s tribal-dominated Gadchiroli district wrote more than 1,000 letters and emails to officers across 15 states, urging them to include information on sickle cell anaemia in school and college curriculum to raise awareness on this hereditary disorder.

 

Key takeaways:

       Dr Ramesh Katre’s efforts bore fruits when Union Minister Nitin Gadkari asked the University Grants Commission (UGC) to request all higher educational institutions across India to consider adding a chapter on this debilitating condition.

 

Sickle Cell Anaemia:

       Sickle cell anaemia is a genetic disorder in which red blood cells become oval shaped due to oxygen deficiency.

       People who have the disease inherit two faulty genes - haemoglobin S, one from each parent.

 

Stats on Sickle Cell Anaemia:

       The World Health Organization (WHO) states that Africa has the highest burden of sickle cell anaemia.

       According to the Centre, India has the second-highest burden of this condition in the world.

       An estimated 30,000-40,000 children born every year suffer from this disorder.

       The condition is especially widespread among India’s tribal population, where one in 86 infants suffers from this condition.

       Of the 15 states that share the highest incidence of this disease, Maharashtra tops the chart.

 

Budget announcement:

       The Finance Minister also announced a mission to eliminate sickle cell anaemia by 2047.

       The programme will include awareness, counselling and universal screening of seven crore people aged up to 40 years in affected tribal areas.

 

Further Reference - National Sickle Cell Elimination Mission